05Feb 2016

Probably the only good thing about dying young is that you go out in a blaze of glory, accomplishment and the promise of great things still to happen. Nobody is tired of you yet; you have not become a burden; you have not begun to repeat all your stories; you haven’t grown old and cranky. Continue Reading →

19Jan 2016

Stories are the cornerstone of all human understanding. We make sense of the world and of new information through stories – how did these same things happen to other people? How did they deal with what we are experiencing right now? What can we learn? As schools around India struggle to adapt to the challenges Continue Reading →

20Dec 2015

The history of disability is a history of courage. How could it be otherwise?  People accustomed to living on the margins of society have less to lose than most. They notice more and they are more accustomed to hardship than ordinary people. Natalia Dmytruk didn’t set out to be a revolutionary. The child of two Continue Reading →

07Oct 2015

With my father and two dear elderly friends dying in the past month, I’m thinking a lot about end-of-life care. Living in India, this report does nothing to reassure me. In a White Paper done by the Economist Intelligence Unit, 80 countries were ranked on quality and affordability of care available to dying people, skill Continue Reading →

17Sep 2015

This is a story within a story and you need to know both of them to get the whole picture. Let’s start with Gia. I met her while walking with Moy Moy one afternoon. She approached us curiously and started asking questions about why Moy was in a stroller, why she was drooling, why she Continue Reading →

29Aug 2015

After he realized he wasn’t cut out to be a priest (that’s a whole different story, for a very different day), my father decided to open a bookstore. And he tried bravely to make a go of it. But selling things just didn’t seem to be in his DNA. After they (my mother had arrived Continue Reading →

27Aug 2015

My Dad died on August 1st. Death has all sorts of approaches. It hits you like a tidal wave the moment it happens, then sucks you down like quicksand as you meet other people who loved him too. It lulls you into forgetfulness and then punches you in the stomach when you open the fridge Continue Reading →

23Jul 2015

Three days ago, I posted here about my fight to become Moy Moy’s legal guardian. As a foreigner, I am, it appears, ineligible under Indian law, in spite of being Moy Moy’s mother and her fiercest champion. My story was widely shared – on facebook, Twitter and the online news magazine: The Wire. Many, many people commented, Continue Reading →

20Jul 2015

On Thursday I attended a meeting at the Dehradun District Magistrate’s office. As one of the city’s prominent organizations for people with disability, we were asked to be present at a session to decide on guardianships for a number of adults with mental handicaps. By law in India, a person over 18 with a mental Continue Reading →